Comments for Moms On Autism http://www.momsonautism.com Picking up the Pieces of Autism Tue, 06 Jan 2009 01:16:28 +0000 http://wordpress.org/?v=2.5.1 Comment on Podcast 12: Vaccinations - A Touchy Topic by Myra http://www.momsonautism.com/2008/10/14/vaccinations-a-touchy-topic/#comment-121 Myra Tue, 16 Dec 2008 14:46:40 +0000 http://www.momsonautism.com/?p=41#comment-121 It's never too early to be an advocate! But, you are correct, not at the expense of your child's therapy. Lisa and I are lucky because as our boys get older we are finding "more" time to learn "more" about autism. (When the boys are in bed or at school is when we do our "work") Also, this has helped us to learn more about helping our sons. It's wonderful to hear positive stories from other parents who are living with autism like us!! You have to remember, therapy for parent is also good therapy for the child. If you stay grounded and don't feel like your all alone, it's easier to cope with any "meltdowns" or issues!! Sharing your story is being an advocate for many and I thank you for sharing, Joanne!! Myra It’s never too early to be an advocate! But, you are correct, not at the expense of your child’s therapy. Lisa and I are lucky because as our boys get older we are finding “more” time to learn “more” about autism. (When the boys are in bed or at school is when we do our “work”) Also, this has helped us to learn more about helping our sons. It’s wonderful to hear positive stories from other parents who are living with autism like us!! You have to remember, therapy for parent is also good therapy for the child. If you stay grounded and don’t feel like your all alone, it’s easier to cope with any “meltdowns” or issues!! Sharing your story is being an advocate for many and I thank you for sharing, Joanne!!

Myra

]]> Comment on Podcast 12: Vaccinations - A Touchy Topic by joanne http://www.momsonautism.com/2008/10/14/vaccinations-a-touchy-topic/#comment-120 joanne Thu, 11 Dec 2008 21:21:05 +0000 http://www.momsonautism.com/?p=41#comment-120 It's so funny, I was just telling my husband today on the phone that I would love to be more of an advocate for autism, but it would have to be once my kids are older. I would feel like I was not doing all I could for my autistic son if I spent my time not on him, but on many. I am 'lucky' because I knew from the second my son was born that there was something different about him. He had *major* sensory issues from the start - major. It wasn't until I had my daughter that I realized that not all babies needed to be wrapped so tightly, have such loud noise in their ears, and be rocked so hard to relax. My son was also big, 9 lbs., 2 oz. at birth and in the 95% for the first year of his life. He never had a reaction to his vaccinations and my daughter (also big but not as big as my son) has never had a reaction either. I have discussed it for a long time with our pediatrician, whom I trust implicitly, so we are going with the regular schedule for vaccinations. I do feel for parents whose children did not show symptoms from the beginning. It’s so funny, I was just telling my husband today on the phone that I would love to be more of an advocate for autism, but it would have to be once my kids are older. I would feel like I was not doing all I could for my autistic son if I spent my time not on him, but on many.

I am ‘lucky’ because I knew from the second my son was born that there was something different about him. He had *major* sensory issues from the start - major. It wasn’t until I had my daughter that I realized that not all babies needed to be wrapped so tightly, have such loud noise in their ears, and be rocked so hard to relax. My son was also big, 9 lbs., 2 oz. at birth and in the 95% for the first year of his life. He never had a reaction to his vaccinations and my daughter (also big but not as big as my son) has never had a reaction either. I have discussed it for a long time with our pediatrician, whom I trust implicitly, so we are going with the regular schedule for vaccinations. I do feel for parents whose children did not show symptoms from the beginning.

]]> Comment on Podcast 13: Yes, My Child Has Autism! by joanne http://www.momsonautism.com/2008/12/02/podcast-yes-my-child-has-autism/#comment-119 joanne Thu, 11 Dec 2008 01:32:14 +0000 http://www.momsonautism.com/?p=44#comment-119 My friend Angie sent me to this site and I am THRILLED. I am also in Indiana, so it's so nice to hear familiar terms, like First Steps. My son is 3.5 and autistic and we have him in a developmental preschool and private therapy but we are considering an ABA school next year. I too worry that I am not doing enough, especially as I have an 11 month old baby girl and am expecting another baby in May. I am really, really glad to know about this site. We certainly have been defining a new normal at my house for the last year or so, but really, we've been doing that since my son was born so it's just more shifting and realigning of expectations and priorities. Which I guess all parents do, right? Anyway, thanks, I'm so glad about this site and I intend to listen to all the podcasts! My friend Angie sent me to this site and I am THRILLED. I am also in Indiana, so it’s so nice to hear familiar terms, like First Steps. My son is 3.5 and autistic and we have him in a developmental preschool and private therapy but we are considering an ABA school next year. I too worry that I am not doing enough, especially as I have an 11 month old baby girl and am expecting another baby in May. I am really, really glad to know about this site. We certainly have been defining a new normal at my house for the last year or so, but really, we’ve been doing that since my son was born so it’s just more shifting and realigning of expectations and priorities. Which I guess all parents do, right? Anyway, thanks, I’m so glad about this site and I intend to listen to all the podcasts!

]]> Comment on Podcast 13: Yes, My Child Has Autism! by Myra http://www.momsonautism.com/2008/12/02/podcast-yes-my-child-has-autism/#comment-118 Myra Mon, 08 Dec 2008 21:28:18 +0000 http://www.momsonautism.com/?p=44#comment-118 Thanks, Niki! Always great to hear from you!! You hit the nail on the head about the child being the same one you brought into the appointment. I always joke that my son with Autism is "easier" than my "typical" son!! My son with Autism listens to me better! I don't think anyone's house is "normal" even if you don't have a child with a disability. Things are what they are in any situation and everyone just needs to make the best of every situation. Thanks again, Niki!! Thanks, Niki! Always great to hear from you!!

You hit the nail on the head about the child being the same one you brought into the appointment. I always joke that my son with Autism is “easier” than my “typical” son!! My son with Autism listens to me better!

I don’t think anyone’s house is “normal” even if you don’t have a child with a disability. Things are what they are in any situation and everyone just needs to make the best of every situation.

Thanks again, Niki!!

]]> Comment on Podcast 13: Yes, My Child Has Autism! by Niki http://www.momsonautism.com/2008/12/02/podcast-yes-my-child-has-autism/#comment-117 Niki Wed, 03 Dec 2008 20:14:15 +0000 http://www.momsonautism.com/?p=44#comment-117 It is always nice to hear people talk about this honestly. I think a lot of parents, when they first receive the diagnosis, forget that NOTHING HAS CHANGED from the time they walked in. The "label" is different but the child is still the same child they walked into the office with. If he (or she!) was sweet and funny and quirky and loving before the diagnosis, than he will still be the same afterwards.....providing the parents just accept him for who he is and quit making the child feel like he is suffering and has ruined his parents' life! I really think the best advice to give to any parent of a child newly diagnosed is, to just "Redefine Normal". In our house we don't even know what "normal" is, we just know how we do things! It probably isn't the same as a lot of people. But if that isn't OK with some people, then I guess those people aren't worth having in our lives. Fortunately, there have been more people that have been understanding than not. Thank you wonderful ladies for everything you do! It is always nice to hear people talk about this honestly. I think a lot of parents, when they first receive the diagnosis, forget that NOTHING HAS CHANGED from the time they walked in. The “label” is different but the child is still the same child they walked into the office with. If he (or she!) was sweet and funny and quirky and loving before the diagnosis, than he will still be the same afterwards…..providing the parents just accept him for who he is and quit making the child feel like he is suffering and has ruined his parents’ life!

I really think the best advice to give to any parent of a child newly diagnosed is, to just “Redefine Normal”. In our house we don’t even know what “normal” is, we just know how we do things! It probably isn’t the same as a lot of people. But if that isn’t OK with some people, then I guess those people aren’t worth having in our lives. Fortunately, there have been more people that have been understanding than not.
Thank you wonderful ladies for everything you do!

]]> Comment on Podcast 2: Our Experiences with Applied Behavioral Analysis by juliefredin http://www.momsonautism.com/2008/03/30/2nd-podcast/#comment-74 juliefredin Fri, 03 Oct 2008 01:26:48 +0000 http://www.momsonautism.com/2008/03/30/2nd-podcast/#comment-74 Hi Lisa and Myra I am the mom of a 2 1/2 year old named Ethan and we have recently been assessed that Ethan has PDD/ Autism. We are currently waiting for the final testing for the actual diagnosis. My husband and I have been doing research trying to find out what we can be doing for him while we wait. Here in Canada there is a few good websites that we can get some info from, but my best info so far has come from the two of you through your podcast. Thank you for starting this site and podcasts, I have found it great to know that I am not alone and the tips you have given have been excellent. I know that not everything works for everyone but it is exciting to know whats out there. Any advice that you can give me in what I should be doing while we wait would be greatly appreciated. We are really wanting to start trying things (as it may be some time before we get the final diagnosis so we can get some therapy), I thought that sign might be a good idea as he gets frustrated that he can't tell us/ we don't understand him, and we just want to make things easier on him. But again I just don't know where to begin. Is the book you have listed above give a step by step or a how to on getting started? Thanks again for starting this site and podcast, I look forward to hearing more. Thanks for your time Julie Fredin thefredins@rogers.com Hi Lisa and Myra

I am the mom of a 2 1/2 year old named Ethan and we have recently been assessed that Ethan has PDD/ Autism. We are currently waiting for the final testing for the actual diagnosis. My husband and I have been doing research trying to find out what we can be doing for him while we wait. Here in Canada there is a few good websites that we can get some info from, but my best info so far has come from the two of you through your podcast. Thank you for starting this site and podcasts, I have found it great to know that I am not alone and the tips you have given have been excellent. I know that not everything works for everyone but it is exciting to know whats out there. Any advice that you can give me in what I should be doing while we wait would be greatly appreciated. We are really wanting to start trying things (as it may be some time before we get the final diagnosis so we can get some therapy), I thought that sign might be a good idea as he gets frustrated that he can’t tell us/ we don’t understand him, and we just want to make things easier on him. But again I just don’t know where to begin. Is the book you have listed above give a step by step or a how to on getting started?
Thanks again for starting this site and podcast, I look forward to hearing more.

Thanks for your time
Julie Fredin
thefredins@rogers.com

]]> Comment on “Resources to Make Sense of Autism” by Bookmarks about Autism http://www.momsonautism.com/2008/07/15/resources-to-make-sense-of-autism/#comment-73 Bookmarks about Autism Tue, 30 Sep 2008 12:30:05 +0000 http://www.momsonautism.com/2008/07/15/resources-to-make-sense-of-autism/#comment-73 [...] - bookmarked by 4 members originally found by spargo1 on 2008-09-10 “Resources to Make Sense of Autism” http://www.momsonautism.com/2008/07/15/resources-to-make-sense-of-autism/ - bookmarked by 1 [...] [...] - bookmarked by 4 members originally found by spargo1 on 2008-09-10 “Resources to Make Sense of Autism” http://www.momsonautism.com/2008/07/15/resources-to-make-sense-of-autism/ - bookmarked by 1 [...]

]]> Comment on Podcast 3: Gluten-Free by Myra http://www.momsonautism.com/2008/04/08/podcast-3-gluten-free/#comment-72 Myra Tue, 09 Sep 2008 13:55:05 +0000 http://www.momsonautism.com/2008/04/08/podcast-3-gluten-free/#comment-72 What a WONDERFUL testimony! Lisa tried gluten-free for a while in the summer for Mateo, but she never noticed a difference. She went to a DANS Doctor (which once we learn more about them, we may do a pod-cast on that!) and felt Mateo needs to be tested for allergies. That is her next step. You have truly motivated us!! Thanks so much for the input and for listening!! What a WONDERFUL testimony! Lisa tried gluten-free for a while in the summer for Mateo, but she never noticed a difference. She went to a DANS Doctor (which once we learn more about them, we may do a pod-cast on that!) and felt Mateo needs to be tested for allergies. That is her next step. You have truly motivated us!! Thanks so much for the input and for listening!!

]]> Comment on Podcast 3: Gluten-Free by laurieharper http://www.momsonautism.com/2008/04/08/podcast-3-gluten-free/#comment-71 laurieharper Sun, 31 Aug 2008 22:15:25 +0000 http://www.momsonautism.com/2008/04/08/podcast-3-gluten-free/#comment-71 Hello. I'm new to this podcast and have only caught up to the 3rd one regarding a GF diet and want to share my experience. I tried GF/CF with our 4 year-old daughter for a month. Her dad and teachers said there was no difference, but I thought she vocalized more. My neighbor mentioned thinking that Kelsey made more sounds. Even though she was 4, she only had random, inconsistent words. I had our family DR run the childhood alllergy panel shortly thereafter. It turns out, our daughter is allergic to wheat, eggs, and peanuts. After 6 months of the appropriate diet, Kelsey's sensory issues have decreased significantly, has over 300+ words in her vocabulary and consistently uses language to communicate what she wants. Two books I found life changing were: An Alternative Approach to Allergies by Randolph Theron and The Gluten Free Gourmet by Bette Hagman. I enjoy your podcast and look forward to catching up on the more recent episodes. Laura Hello. I’m new to this podcast and have only caught up to the 3rd one regarding a GF diet and want to share my experience.

I tried GF/CF with our 4 year-old daughter for a month. Her dad and teachers said there was no difference, but I thought she vocalized more. My neighbor mentioned thinking that Kelsey made more sounds. Even though she was 4, she only had random, inconsistent words. I had our family DR run the childhood alllergy panel shortly thereafter. It turns out, our daughter is allergic to wheat, eggs, and peanuts.

After 6 months of the appropriate diet, Kelsey’s sensory issues have decreased significantly, has over 300+ words in her vocabulary and consistently uses language to communicate what she wants.

Two books I found life changing were: An Alternative Approach to Allergies by Randolph Theron and The Gluten Free Gourmet by Bette Hagman.

I enjoy your podcast and look forward to catching up on the more recent episodes.

Laura

]]> Comment on “Resources to Make Sense of Autism” by Myra http://www.momsonautism.com/2008/07/15/resources-to-make-sense-of-autism/#comment-70 Myra Mon, 11 Aug 2008 01:38:42 +0000 http://www.momsonautism.com/2008/07/15/resources-to-make-sense-of-autism/#comment-70 Thank you so much for the information!! We look forward to reading it!! More podcast to come! Myra Myra@momsonautism.com Thank you so much for the information!! We look forward to reading it!!

More podcast to come!

Myra
Myra@momsonautism.com

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